Lowe's Syndrome

Sullivan family raises awareness for Lowe’s Syndrome

From left are Dixy Perez, Simon Perez (Baby Simon) and Simon Jr. from Fort Worth Texas; Thomas Sullivan holding Waylon Sullivan, Wendy Sullivan from Hamilton; Stephanie Green, her fiance Chris Lindsey from Prattville, Ala.; and Bethany and Kenny Reynolds with son Oliver from Lakeland, Fla.

On Friday, April 28, and Saturday, April 29, we hosted our third annual “Show for Lowe’s.” The Show for Lowe’s” is a big truck show we use to spread awareness and raise funds for our foundation. Our son Waylon was diagnosed with a rare genetic disorder known as Lowe Syndrome when he was six months old. We had never even heard of Lowe Syndrome until he was diagnosed. My husband Thomas Sullivan is an owner-operator and is leased on with Robertson Trucking. Thomas came up with the idea to use his truck to raise more awareness.